Saturday, August 21, 2010

XMRV = MLV-like variant

The Alter study arrived today and the results were as rumored, with a little twist. The study authors use the term MLV-related virus for XMRV, seemingly finding a variant of XMRV. This "variant" is closely related to XMRV - or it is the same thing. The Alter group used the same primers as the WIP and got increased percentages of MLV-related virus.

This release sets the stage for the NIH to rapidly funnel discretionary funding to the WPI and their allied labs in order to accelerate research into ME/CFS illness. Perhaps now the NIH can fund the WIP proposals that they turned down (based on their absurd reasoning that XMRV was "experimental").

The NIH is a "more together" department than the FDA or the CDC, and it is possible to get the NIH on your side. Once this happens things can move along quickly. We see in the NYTimes article of August 13th what can happen when the NIH funnels enough money into a situation to neutralize the greed of these scientists, and to allow them to temporarily suspend their maniacal egos. Can this happen here? Can the NIH infuse enough money fast enough to neutralize big-shot/little-shot scientists from borrowing (stealing) the WPI's data (which seems to be their first inclination)?

It is time for the U.S. government to do "one correct thing". It is not too late for them to redeem themselves.

Meanwhile the folks at the FDA must be freaking out about the blood supply. They were told in a closed door meeting in July 2009 about the potential threat of XMRV to the blood supply and they chose to do nothing. Now the FDA's foot dragging is going to be costly.

A simple question can be asked about "these people". What were they thinking?

Meanwhile Amy Dockser Marcus publishes this in the WSJ today.

1 comment:

  1. Patient Advocate said: "This release sets the stage for the NIH to rapidly funnel discretionary funding to the WPI and their allied labs in order to accelerate research into ME/CFS illness." I am so very hopeful that this will happen.

    Instead of freaking out over the blood supply, the CDC is repeating the same thing in their website updated 08/23/2010: "At the present time, there are no U.S. recommendations to defer organ and tissue donations from individuals diagnosed with chronic fatigue syndrome..." This is OUTRAGEOUS! They are disregarding the health of the entire public, no longer just condemning those of us with ME/CFS to suffer. http://www.cdc.gov/xmrv/questions-answers.html Let's hope the people at NIH have more sense than those at the CDC.

    Patricia Carter
    www.mecfsforums.com

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