Tuesday, October 5, 2010

"Time for Action" Campaign

"Time for Action" Campaign
For ME/CFS Patients, Their Families and Friends

Organizers: Robert Miller, Rivka Solomon, Charlotte von Salis
Contact:
bobmiller42@msn.com

On the heels of the September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let our federal health agencies know we are expecting big changes. The more they hear from us now, the more they'll listen to us next time we meet. Our "Time for Action" campaign is advocacy made easy -- yet it will have a huge impact. We ask patients, their families and friends to email, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question every day, starting today. (Please Cc: emails to Robert Miller at: hebs1reel@yahoo.com)
Dear Directors Collins and Fauci,

What have you done for ME/CFS today? Patients and their families are waiting.

Name: John Doe (or John)
Location: Miami, FL
Time: Sick 12 years

Contact info:
1) National Institutes of Health
Director Francis Collins
Email: collinsf@od.nih.gov
Cc to:
hebs1reel@yahoo.com
Phone: 301-496-2433
Fax: 301-402-2700

2) National Institutes of Allergy and Infectious Disease
Director Anthony Fauci
Email:
afauci@niaid.nih.gov
Cc to: hebs1reel@yahoo.com
Phone: 301-496-2263
Fax: 301-402-3573


For inspiration, here's our "How To" video:

1 comment:

  1. Greetings from Norway! Norwegian patients and their families are looking to the US for progress.
    "ME-specialists" in Norway find it "facinating that we can make-believe a retro virus".
    Nothing will happen here until it has happend in the US.

    Thank you for working towards better treatment for ME patients all over the world.

    ReplyDelete