Wednesday, April 13, 2011

Dr. Jose Montoya, Stanford University



Here is a video of Dr. Jose Montoya of Stanford, talking about diagnosis and treatment of ME/CFS. This man is high on my list of people who are trying to make significant progress against ME/CFS. He is collaborating with Ian Lipkin on various viruses potentially involved in ME/CFS. Dr. Montoya does not have a fixed position on the retroviral role in ME/CFS, although he is keeping an open mind. Among other things, he and his team are developing a cytokine profile to identify patients with ME/CFS. Frankly I would have liked to see Dr. Montoya at the NIH State of Knowledge. Dr. Montoya walks into the room and his presence is felt immediately. If the NIH really wanted to get somewhere they would engage more of these infectious disease clinicians/researchers who are courageous enough to engage this illness right now. It would lend an air of immediacy to the precedings and go a long way towards convincing the patients that somebody is trying to engage ME/CFS right now. If the NIH had enough sense to do this, a different picture would be presented - one that was clearer and stronger than the vague wandering that we just observed. They had the chance and they blew it. Incidentally Dr. Montoya looks like he is willing to cooperate with the WPI or Dr. Lerner or Dr. Enlander. Although he is an extremely busy man, he has the right idea and has his heart is in the right place.

9 comments:

  1. We dream too Dr Montoya. What a lovely man.

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  2. Has anyone said DrMontoya isn't actually interested in ME?

    I hope he does get to work with the WPI, etc. However he should changed the name of his clinic at Stanford as it is innapropriate for ME/CFS or any other disease.

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  3. I cry every time I see Dr.Montoya speak because I am so grateful to hear someone in the medical and research fields who truly understands what an awful disease ME/CFS is. He has such compassion for our suffering and it shows every time he speaks. I can't wait to see the results of his latest research project.

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  4. Can we clone Dr. Montoya and Dr. Mikovits both?:)
    I think Dr. Montoy is on his way to doing great things for people with ME.
    I wish he had been at the Sok conference too. Why was he not?

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  5. Patient Advocate: "Frankly I would have liked to see Dr. Montoya at the NIH State of Knowledge."

    So would I, Patient Advocate.

    Patricia Carter

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  6. Dr Montoya was invited to speak, but was unable to do so. He was first on our list for looking at HHV.

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  7. Dr. Montoya mentioned in his recent talk at Stanford that the WPI is also looking at HHV-6. He's definitely talking to them. Judy was asked in Santa Rosa about Montoya, and she also said that they were in contact.

    His research is aimed at treatments for at least some subset of viral infections (co-infections?) and he was very open about his willingness to speak to doctors who call in for information on their own patients. He's a treasure!!

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  8. Thank you so much Dr. Montoya.

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  9. I pray for all of us who are suffering from this illness. We need more doctors who can really understand how to best support us. Gracias Dr. Montoya.

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