Thursday, April 26, 2012

MECFS Alert - Llewellyn King



Llewellyn King and Deborah Waroff have an ongoing series of short informational videos on ME/CFS entitled "MECFS Alert". The goal of this series is to heighten ME/CFS awareness and to provide critical information about treatment and research into this illness. So far there are 23 episodes and they are available on a "MECFS Alerts" youtube channel. We have to thank Llewellyn King and Deborah Waroff for their efforts that allow the rest of us, worldwide, to have access to important information and developments.

The most recent three-part episode features an interview with Dr. Andreas Kogelnik. Dr. Kogelnik is a clinician/researcher who runs the Open Medicine Institute in Mountain View, CA. Dr. Kogelnik worked with Dr. Jose Montoya at Stanford on the Valcyte trial. Since then Dr. Kogelnik has opened his own clinic in Mountain View, CA and is working hard to find treatments for ME/CFS. Dr Kogelnik is one of a number of younger clinician/researchers who have moved into this field, and are tying to consolidate and energized diagnosis and treatment.

This is an excellent interview. Llewellyn King asks all the right questions and Dr. Kogelnik provides articulate responses, stating his views on the illness and the current efforts that his Institute is pursuing. The viewer gets the sense that this clinician/researcher wants to get at the mechanism of this illness or these illnesses.

Dr. Kogelnik will be speaking at the upcoming InvestinME conference in London on June 1, 2012. He gave a talk at this conference a year ago and more can be read about Dr. Kogelnik on the InvestinME website here.



3 comments:

  1. Very grateful for this infomation, PA. Saw the first few King/Waroff episodes but did not know they were going to continue. Hats off to them!

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  2. Very informative, thank you

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  3. I am wondering why Dr. K would be studying Enbrel for use in CFIDS/ME patients? Can anyone explain this to me? I am on Enbrel for psoriatic arthritis and take a risk with my immune system with each injection weekly. Enbrel is not safe for immune compromised patients. Yet, I risk it to stay mobile. I've also endured life threatening blood and bone infections as well. Its a difinitive trade off for me as I am immobile without it and I have CFS. Julia

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