CFS Patient Advocate

Sunday, August 30, 2009

Doctors

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It is important for a CFS/ME patient to have a sympathetic doctor - a doctor who knows something about this disease. Often it is good to hav...
Thursday, August 20, 2009

Disbelief

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I got a call from a friend of a friend today. This person has a 26 year old girlfriend who has recently become sick. The couple was on a vac...
Wednesday, August 19, 2009

Advice to a friend

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What I can say is this, and I am very clear on my idea here because my life has been altered by my daughter's situation.(I am not compl...
2 comments:

Thyroid again

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Information about treating thyroid in the CFS/ME patient can be confusing. Perhaps the PA will be told that the treatment needs to be tempor...
1 comment:
Monday, August 17, 2009

Gut dysbiosis

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As my patient rests in her room there are a number of things that can be done for her. This does not include brain scans or sleep studies. T...
Saturday, August 15, 2009

coQ10

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This Patient Advocate has been reading about co-Q-10 recently. So many of these CFS topics come in and out of focus, almost on a rotational ...

Typical days in PA and MN

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What is the average morning of a patient advocate? Well, the PA will get up and start his day like everyone else. He will have his coffee. R...
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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