CFS Patient Advocate

Tuesday, September 29, 2009

Gut Dysbiosis (again)

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At times stories emerge of individuals gaining betterment from one particular treatment. For instance MATN recovered from her illness with a...
4 comments:
Wednesday, September 23, 2009

Dr. Derek Enlander

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Dr. Derek Enlander has a practice in New York City. His office is in midtown NY, on 69th and Fifth Avenue. Dr. Enlander has been treating C...
Thursday, September 3, 2009

Terry Wahls

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The Patient Advocate will spend a great many hours on the internet noodling around, trying to find things that will help his daughter . Afte...
Sunday, August 30, 2009

Doctors

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It is important for a CFS/ME patient to have a sympathetic doctor - a doctor who knows something about this disease. Often it is good to hav...
Thursday, August 20, 2009

Disbelief

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I got a call from a friend of a friend today. This person has a 26 year old girlfriend who has recently become sick. The couple was on a vac...
Wednesday, August 19, 2009

Advice to a friend

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What I can say is this, and I am very clear on my idea here because my life has been altered by my daughter's situation.(I am not compl...
2 comments:

Thyroid again

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Information about treating thyroid in the CFS/ME patient can be confusing. Perhaps the PA will be told that the treatment needs to be tempor...
1 comment:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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