CFS Patient Advocate

Saturday, March 27, 2010

Setting the table

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The job of the Patient Advocate is to “remain objective” - and to try to keep the big picture in mind. This is difficult - as CFS/ME is a di...
4 comments:
Thursday, February 18, 2010

Focus on Dr. John Chia, Researcher

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The Patient Advocate wants to write about Dr. John Chia. Dr. Chia is an infectious disease specialist who worked on EBV for many years. He g...
4 comments:
Tuesday, February 16, 2010

Gut treatment using the Metametrix GI Effects test

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Many doctors, including Peterson, Cheney, Guyer, Myhill and de Meirleir advocate working on the gut and trying to get it into balance. This ...
8 comments:
Wednesday, December 2, 2009

Ampligen Sunk

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The FDA announced on December 1, 2009 that Ampligen would not be approved at this time. They asked for new trial - larger, more expensive tr...
2 comments:
Wednesday, November 4, 2009

ImmuKnow

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The Patient Advocate has known about the ImmuKnow test from Viracor for several years. Here are some quotes from the ViraCor site: “ImmuKno...
1 comment:
Sunday, October 25, 2009

The Abstract and the Real

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All this viral research and treatment is heady stuff, riddled with uncertainly. On a daily basis the Patient Advocate has to deal with much ...
3 comments:
Saturday, October 24, 2009

Lisa Nagy

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When this Patient Advocate was attending the CFS conference in Ft. Lauderdale in 2007, he met a very interesting gal. Her name is Lisa Nagy...
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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