CFS Patient Advocate

Thursday, September 9, 2010

Hire this guy.

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Dr. Michael Snyderman Yesterday's question and answer session was a grinding bore. The tone was set b...
12 comments:
Tuesday, July 27, 2010

InvestinME DVD - Pia and Richard Simpson

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It has been two months now since the May 2010 InvestinME conference. The receipt of the DVD makes me want to reflect on this organization In...
3 comments:
Saturday, July 10, 2010

1996 Prime Time report on CFS

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In reading this morning I came upon this video posted by ixchelkali on the Phoenix Rising message board. Surprisingly I had not seen this be...
4 comments:
Sunday, May 30, 2010

GcMAF

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I first heard about GcMAF in the fall of 2009 and began asking about it. Not too many people either knew about it or wanted to talk about it...
12 comments:
Tuesday, May 25, 2010

London Conference May 24, 2010

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(Richard Simpson, Martin Lerner, Invest in ME conference, 2008) Here is my report from the Invest in ME conference in London that took place...
9 comments:
Saturday, March 27, 2010

Setting the table

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The job of the Patient Advocate is to “remain objective” - and to try to keep the big picture in mind. This is difficult - as CFS/ME is a di...
4 comments:
Thursday, February 18, 2010

Focus on Dr. John Chia, Researcher

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The Patient Advocate wants to write about Dr. John Chia. Dr. Chia is an infectious disease specialist who worked on EBV for many years. He g...
4 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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