CFS Patient Advocate

Saturday, November 20, 2010

Dr. Marcus Conant and Advocacy

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In his quest to help his daughter get better, the Patient Advocate went to hear Dr. Marcus Conant at the recent ILADS conference. Dr. Conan...
6 comments:
Sunday, November 14, 2010

Maija Haavisto

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Here is a video of Maija Haavisto speaking about her experience with Low Dose Naltrexone (LDN). The Patient Advocate has wanted to write som...
4 comments:
Sunday, October 17, 2010

ILADS conference 2010 - Dr. Marcus Conant

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The Patient Advocate came to the ILADS conference in Jersey City, NJ to hear several talks. The ILADS organizers departed from past practice...
14 comments:
Wednesday, October 13, 2010

Put this gal in charge - let her run the show.

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The Patient Advocate listened to the public testimony at the CFSAC, many of which were inspired presentations.These testimonies are availabl...
5 comments:
Thursday, September 9, 2010

Hire this guy.

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Dr. Michael Snyderman Yesterday's question and answer session was a grinding bore. The tone was set b...
12 comments:
Tuesday, July 27, 2010

InvestinME DVD - Pia and Richard Simpson

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It has been two months now since the May 2010 InvestinME conference. The receipt of the DVD makes me want to reflect on this organization In...
3 comments:
Saturday, July 10, 2010

1996 Prime Time report on CFS

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In reading this morning I came upon this video posted by ixchelkali on the Phoenix Rising message board. Surprisingly I had not seen this be...
4 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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