CFS Patient Advocate

Saturday, March 12, 2011

Laurel's testimony and video

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In rooting around for Dr. Joan Grobstein's 2009 CFSAC testimony, I came upon once again Laurel's powerful video testimony from Octob...
2 comments:

Dr. Joan Grobstein, continued

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I have looked further and carefully for the video testimony of Dr. Grobstein of the October 2009 CFSAC meeting. It is no longer online. Many...
4 comments:
Friday, March 11, 2011

Dr. Joan Grobstein

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I want to consider Dr. Joan Grobstein once again - as what she says is so important. I don't pretend to be able to articulate issues as ...
9 comments:
Thursday, January 13, 2011

The Sound of a Wild Snail Eating

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An Appreciation A small book with the improbable title The Sound of a Wild Snail Eating was published in the late summer of 2010. It...
3 comments:
Saturday, December 25, 2010

Repost of Laurel's video

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Here is an exquisite Holiday gift from Laurel. Take a look at this video. It is the one of the best that the Patient Advocate has seen on ME...
2 comments:
Saturday, November 20, 2010

Dr. Marcus Conant and Advocacy

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In his quest to help his daughter get better, the Patient Advocate went to hear Dr. Marcus Conant at the recent ILADS conference. Dr. Conan...
6 comments:
Sunday, November 14, 2010

Maija Haavisto

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Here is a video of Maija Haavisto speaking about her experience with Low Dose Naltrexone (LDN). The Patient Advocate has wanted to write som...
4 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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