CFS Patient Advocate

Saturday, May 28, 2011

Anonymous #3 - CFSAC testimony

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May 10, 2011 To the Members of the Chronic Fatigue Syndrome Advisory Committee: In 1994, I was a healthy 20-year-old college stu...
6 comments:
Tuesday, May 24, 2011

A voice for the most severe ME patients

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It is always of interest to read about the ineptitudes of the functionaries who work for the United States Government. We must thank Dr. Joa...
45 comments:
Saturday, May 14, 2011

Dr Joan Grobstein - CFSAC videos

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Dr. Joan Grobstein has testified four times at the CSFAC meetings in the last two years. What she has to say is very important and the gover...
1 comment:
Friday, May 13, 2011

Dr Joan Grobstein - CFSAC testimony May 2011

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Hello. I’m Dr. Joan Grobstein. I’m a physician. Here we are again. At the beginning of the NIH State of the Knowledge Worksh...
5 comments:

Mindy Kitei testimony - CFSAC, May 2011

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Here is the testimony of Mindy Kitei at the recent CFSAC meeting. Mindy has a strong and clear voice and this testimony is especially powerf...
1 comment:
Saturday, March 12, 2011

Laurel's testimony and video

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In rooting around for Dr. Joan Grobstein's 2009 CFSAC testimony, I came upon once again Laurel's powerful video testimony from Octob...
2 comments:

Dr. Joan Grobstein, continued

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I have looked further and carefully for the video testimony of Dr. Grobstein of the October 2009 CFSAC meeting. It is no longer online. Many...
4 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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