CFS Patient Advocate

Thursday, November 17, 2011

Mt. Sinai conference - Rich van Konynenburg

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The upcoming conference at Mt. Sinai (on Sunday November 20, 2011) is a step in the right direction. This conference, the first of the new...
10 comments:
Wednesday, September 21, 2011

Voices from the Shadows

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“Voices from the Shadows” is a film about severe Myalgic Encephalomyelitis (ME). Natalie Boulton and her filmmaker son Josh Biggs made th...
17 comments:
Sunday, July 24, 2011

Thiamine

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For years I have read about thiamine, and thiamine deficiency, in ME. Thiamine deficiency is known to cause many symptoms that are similar t...
11 comments:
Friday, July 22, 2011

Mitochondria

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Recent events have gotten me to focus again on mitochondria and its relation to ME. None of the following is presented as medical advice or ...
22 comments:
Saturday, June 25, 2011

Dr. Denise Faustman

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I know nothing about science and its practitioners. Personal circumstances have led me to read and learn about type 1 diabetes research for ...
3 comments:
Saturday, May 28, 2011

Anonymous #3 - CFSAC testimony

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May 10, 2011 To the Members of the Chronic Fatigue Syndrome Advisory Committee: In 1994, I was a healthy 20-year-old college stu...
6 comments:
Tuesday, May 24, 2011

A voice for the most severe ME patients

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It is always of interest to read about the ineptitudes of the functionaries who work for the United States Government. We must thank Dr. Joa...
45 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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