CFS Patient Advocate

Thursday, December 29, 2011

Myalgic Encephalomyelitis - an impact video

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It is important to be clear about this disease Myalgic Encephalomyelitis, ME. Clarity is something that has been sadly lacking over the year...
19 comments:
Saturday, December 10, 2011

CFSAC Testimony of Anonymous #3

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The testimonies of the recent CFSAC meeting are now online. They can be found here . Why these meeting cannot be streamed live and put immed...
20 comments:
Wednesday, December 7, 2011

Mt. Sinai ME/CFS conference - Dr. Enlander lecture

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Dr. Derek Enlander, who practices medicine in NYC, was instrumental in arranging a one-day ME/CFS conference at Mt. Sinai Hospital on Sunda...
7 comments:
Thursday, November 17, 2011

Mt. Sinai conference - Rich van Konynenburg

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The upcoming conference at Mt. Sinai (on Sunday November 20, 2011) is a step in the right direction. This conference, the first of the new...
10 comments:
Wednesday, September 21, 2011

Voices from the Shadows

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“Voices from the Shadows” is a film about severe Myalgic Encephalomyelitis (ME). Natalie Boulton and her filmmaker son Josh Biggs made th...
17 comments:
Sunday, July 24, 2011

Thiamine

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For years I have read about thiamine, and thiamine deficiency, in ME. Thiamine deficiency is known to cause many symptoms that are similar t...
11 comments:
Friday, July 22, 2011

Mitochondria

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Recent events have gotten me to focus again on mitochondria and its relation to ME. None of the following is presented as medical advice or ...
22 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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