Friday, September 28, 2012

"All there, all the time." - Rich van Konynenburg

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It was with great sadness that I learned of the death of Rich van Konynenburg. Rich did a tremendous amount of good for patients with neuro...
6 comments:
Sunday, August 12, 2012

Dr. Denise Faustman, researcher

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Since 1990, for unspecified reasons, I have been reading every day about diabetes. Over that time, I have followed diabetes research and tr...
2 comments:
Saturday, August 11, 2012

"The Garden"

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In the course of my job as patient advocate for my daughter, I travel to various places - CA, London, New York City, Ottawa, Brussels. Most...
6 comments:
Thursday, December 29, 2011

Myalgic Encephalomyelitis - an impact video

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It is important to be clear about this disease Myalgic Encephalomyelitis, ME. Clarity is something that has been sadly lacking over the year...
19 comments:
Saturday, December 10, 2011

CFSAC Testimony of Anonymous #3

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The testimonies of the recent CFSAC meeting are now online. They can be found here . Why these meeting cannot be streamed live and put immed...
20 comments:
Wednesday, December 7, 2011

Mt. Sinai ME/CFS conference - Dr. Enlander lecture

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Dr. Derek Enlander, who practices medicine in NYC, was instrumental in arranging a one-day ME/CFS conference at Mt. Sinai Hospital on Sunda...
7 comments:
Thursday, November 17, 2011

Mt. Sinai conference - Rich van Konynenburg

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The upcoming conference at Mt. Sinai (on Sunday November 20, 2011) is a step in the right direction. This conference, the first of the new...
10 comments: