CFS Patient Advocate

The CFSAC committee met again on October 3-4, 2012. Public testimony can be seen in the above youtube clip and an accompanying one. As us...

It was with great sadness that I learned of the death of Rich van Konynenburg. Rich did a tremendous amount of good for patients with neuro...

Since 1990, for unspecified reasons, I have been reading every day about diabetes. Over that time, I have followed diabetes research and tr...

In the course of my job as patient advocate for my daughter, I travel to various places - CA, London, New York City, Ottawa, Brussels. Most...

It is important to be clear about this disease Myalgic Encephalomyelitis, ME. Clarity is something that has been sadly lacking over the year...

The testimonies of the recent CFSAC meeting are now online. They can be found here . Why these meeting cannot be streamed live and put immed...

Dr. Derek Enlander, who practices medicine in NYC, was instrumental in arranging a one-day ME/CFS conference at Mt. Sinai Hospital on Sunda...