CFS Patient Advocate

Friday, January 11, 2013

More with Dr. John Chia - Llewellyn King Interview

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Here is the second part of an ME/CFS Alert interview with Dr. John Chia. Llewellyn King does such a fine job at interviewing his subjects...
3 comments:
Saturday, December 22, 2012

Llewellyn King interview with Dr. John Chia

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Here is an excellent interview by Llewellyn King with Dr. John Chia of Torrance, CA. Dr. Chia is one of the foremost clinician/researche...
9 comments:
Sunday, November 18, 2012

Adult Stem Cell Video for Muscular Dystrophy

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Several years ago there were reports of Dr. Paul Cheney taking ME/CFS patients to Costa Rica and Panama for autologous stem cell treat...
3 comments:
Monday, October 22, 2012

CFSAC testimony - Dr. Joan Grobstein on Responsibility

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The CFSAC committee met again on October 3-4, 2012. Public testimony can be seen in the above youtube clip and an accompanying one. As us...
4 comments:
Friday, September 28, 2012

"All there, all the time." - Rich van Konynenburg

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It was with great sadness that I learned of the death of Rich van Konynenburg. Rich did a tremendous amount of good for patients with neuro...
6 comments:
Sunday, August 12, 2012

Dr. Denise Faustman, researcher

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Since 1990, for unspecified reasons, I have been reading every day about diabetes. Over that time, I have followed diabetes research and tr...
2 comments:
Saturday, August 11, 2012

"The Garden"

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In the course of my job as patient advocate for my daughter, I travel to various places - CA, London, New York City, Ottawa, Brussels. Most...
6 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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