CFS Patient Advocate

Thursday, May 30, 2013

Moving a Severe ME patient

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I was at the recent FDA meeting. Whether it is this meeting or any other government meetings, no mention is ever made of severel...
4 comments:
Thursday, May 9, 2013

Mindy Kitei at the FDA

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6 comments:
Tuesday, April 23, 2013

Paul Cheney lecture - March 22, 2013

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Here is the first part of a Paul Cheney lecture given in North Carolina on March 22, 2013. It is entitled "Compassionate Use Treatme...
6 comments:
Sunday, March 31, 2013

Alexander Khoruts, M.D.

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I first read about Alexander Khoruts and his work a good number of years ago.  He is right here in Minnesota at the University of Minnesot...
1 comment:
Sunday, March 24, 2013

Jessica's Story - Severe ME

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Here is a video of Jessica, a young woman with Severe Myalgic Encephalomyelitis. Jessica has been bedbound for seven years. The video is ...
11 comments:
Monday, February 25, 2013

"Hanging Fire" – Dr. John Chia

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I remember well the ME/CFS researcher Jonathan Kerr. Many people might not remember that he wrote a paper on enteroviral involve...
17 comments:
Monday, February 18, 2013

Dr. John Chia with Llewellyn King

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Just today I was speaking to a friend about Llewellyn King's gifts at interviewing people. Here is another example of his fine work, ...
1 comment:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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