CFS Patient Advocate

Thursday, October 31, 2013

Mount Sinai ME/CFS conference - November 20, 2013

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Dr. Derek Enlander is chairing an ME/CFS treatment conference at Mount Sinai in New York City on Wednesday, November 20, 2013. This one day...
4 comments:
Thursday, October 17, 2013

ILADS/San Diego

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I am heading to San Diego for the ILADS conference on October 18-20. ILADS is a four-day conference on Lyme disease, its diagn...
4 comments:
Wednesday, September 11, 2013

Blue Skies in MN (NK cell function)

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I was pleased to receive the DVD of the Invest in ME conference. The Invest in ME conference was held in London in late May ...
3 comments:
Friday, August 16, 2013

Striker drugs or terrain modulation?

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Here in Minnesota, I try to escape the role of a patient advocate for a few hours and recapture my own reality. Often I go into the ...
7 comments:
Thursday, August 8, 2013

Laurel B.'s ME/CFS video

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Here is a re-edited version of Laurel B's fine ME/CFS video. Laurel has done a service for us all in making this essential video. . ...
2 comments:
Thursday, May 30, 2013

Moving a Severe ME patient

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I was at the recent FDA meeting. Whether it is this meeting or any other government meetings, no mention is ever made of severel...
4 comments:
Thursday, May 9, 2013

Mindy Kitei at the FDA

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6 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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