CFS Patient Advocate

Saturday, June 3, 2017

Dr. John Chia and Enterovirus. Old hat? Nope - a key.

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Recently, the 12th Invest in ME conference in London ended. This ME/CFS conference is three days of serious research discussion and presen...
Wednesday, December 31, 2014

This time of year - and Severe ME/CFS

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It is that time of year again. Holiday time and the New Year is the saddest season for ME/CFS patients. While the dance of life goes on f...
4 comments:
Friday, April 25, 2014

More on Enteroviruses and ME/CFS

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A few recent comments on the history of research into enteroviral involvement in ME/CFS are worth highlighting. These comments come from Dr...
1 comment:
Tuesday, April 15, 2014

"ad astra per aspera" - Dr. John Chia's ideas taking hold

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("ad astra per aspera" - "a rough road leads to the stars") Several summaries have emerged of the IACFS/ME conferenc...
6 comments:
Sunday, March 30, 2014

Dr. Joseph Brewer and Mycotoxins, an update

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Dr. Joseph Brewer of Kansas City was one of the physicians who did not attend the recent IACFS/ME conference. Dr. Brewer is an infectious d...
26 comments:
Tuesday, March 25, 2014

IACFS/ME - and then Mission Delores

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At the end of this year's IACFS/ME meeting I headed out on foot to the Mission District and to visit an old favorite: Mission Delo...
12 comments:
Saturday, November 23, 2013

Mt. Sinai ME/CFS conference – November 20, 2013

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The second conference at the Mt. Sinai ME/CFS Center was held on Wednesday, November 20, 2013. (The first conference was t...
12 comments:
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About Me

consuegra
I am the patient advocate of my 40-year-old daughter. She is housebound in St. Paul MN with CFS/ME. This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one.
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