tag:blogger.com,1999:blog-4895604594896814289.post2648929172661600422..comments2023-08-20T01:37:48.791-07:00Comments on CFS Patient Advocate: Mt. Sinai conference - Rich van Konynenburgconsuegrahttp://www.blogger.com/profile/05666537564189582035noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4895604594896814289.post-88774859350787987602012-09-16T10:25:26.057-07:002012-09-16T10:25:26.057-07:00There is no "Dr. Merriam Merron"There is no "Dr. Merriam Merron"Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-72565827863773656062011-11-19T21:21:53.126-08:002011-11-19T21:21:53.126-08:00Methylation supports the HGRVs hypothesis for ME. ...Methylation supports the HGRVs hypothesis for ME. What a supriseAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-49842563457192338522011-11-19T20:43:18.267-08:002011-11-19T20:43:18.267-08:00What is glutathione? What is methylation? I'...What is glutathione? What is methylation? I've had this darned disease for nearly 26 years, and have not heard of either of these terms.<br /><br />I am eager to hear what Dr. Enlander and the other experts say at the seminar.<br /><br />I am quite dismayed and angry that Dr. Mikovits was arrested at her home in Ventura County, Calif. This is quite a vindictive, vengeful power play that's going on here against her; none of us helps those of us with CFIDS in any way. In fact, the stress of it makes us worse.<br /><br />And to stop her from attending an important research seminar in New York, when she could make a contribution to our welfare and knowledge about this disease -- is beyond unfair. It's an outrage against the CFIDS community.kathy d.noreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-44984690737697295792011-11-19T19:41:45.034-08:002011-11-19T19:41:45.034-08:00Next stop, hydrogen sulfide. Here is what Rich sa...Next stop, hydrogen sulfide. Here is what Rich said on a blog earlier this year about hydrogen sulfide:<br />"Yes, your H2S thinking seems to be catching on, at least among the "cognoscenti" (:-) and it may be the key to linking Dr. de Meirleir's observations and emphasis on the gut issues to my GD-MCB hypothesis."<br /><br /> H2S is very much involved in the production of glutathione. If you look closely, you will see that H2S can serve as an underlying mechanism and unifying hypothesis for the disease.Marian Dix Lemlenoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-53089770569200073792011-11-19T18:03:29.844-08:002011-11-19T18:03:29.844-08:00BioChemistry is an essential component to cracking...BioChemistry is an essential component to cracking this nut called ME/CFS, as it is with all other linked neurological diseases. I am happy to see someone else noticing this equation. It was a biochemist, or simliar field, who helped Howard Bloom crawlm out of a darkened room in a fetal state, after being hot with ME/CFS and being incapacitated for 17 years. WE need more information from this field, to fit in with etiology, virology, infectious disease, immunology, epidemiology, cardiology plus endocrinology ad rhuematology and more. This is a systemic meltdown.<br />Julia Hugo RachelAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-88008461412410011652011-11-19T17:26:31.374-08:002011-11-19T17:26:31.374-08:00Just trying the Immunoprop and other supplements f...Just trying the Immunoprop and other supplements from Dr Enlander's site and feel almost 100% better within days, - there is really something to this methylation aspect of ME/CFS. Thanks to Rich and all who brought it to our attention. Hurray!!!Bevhttp://omshome.comnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-19174510831696366402011-11-19T14:22:02.729-08:002011-11-19T14:22:02.729-08:00Could you please consider removing your link to do...Could you please consider removing your link to donating to the WPI on your blog page? <br /><br />As always I enjoyed your blog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-64005332471700610022011-11-19T12:15:07.946-08:002011-11-19T12:15:07.946-08:00since you posted this Judy is in prison.since you posted this Judy is in prison.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-52197374259920971082011-11-19T11:50:01.596-08:002011-11-19T11:50:01.596-08:00I'm so glad you posted this. I've been re...I'm so glad you posted this. I've been receiving glutathione IVs and had great sucess detoxing with these. However, I just had a major relapse so was looking for why since glutathione in and of itself isn't the answer. I'm going to try out his protocol and see what happens. Thanks so much for the information and links.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-20902934786394653002011-11-19T11:22:02.491-08:002011-11-19T11:22:02.491-08:00Rich van Konynenburg is a gentleman and a scholar....Rich van Konynenburg is a gentleman and a scholar. I greatly admire his calm, even-handed presence on internet forums. He could serve as a role model for all of us. Thanks for giving him credit for his many original ideas and his contributions to ME/CFS research.<br /><br />FloAnonymousnoreply@blogger.com