tag:blogger.com,1999:blog-4895604594896814289.post8034520057890270492..comments2023-08-20T01:37:48.791-07:00Comments on CFS Patient Advocate: Dr Joan Grobstein - CFSAC testimony May 2011consuegrahttp://www.blogger.com/profile/05666537564189582035noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-4895604594896814289.post-57850515092698722822011-05-14T15:14:56.624-07:002011-05-14T15:14:56.624-07:00No-one -- not medical schools, not med students, n...No-one -- not medical schools, not med students, not MD's, not researchers, not governments -- will take this disease seriously when it is called "chronic fatigue syndrome". The addition of "ME" helpful, but does not erase the stigma of the "CFS" part.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-44320205562605472362011-05-14T13:35:57.419-07:002011-05-14T13:35:57.419-07:00Now if only we could make the NIH/CDC accountable ...Now if only we could make the NIH/CDC accountable for Dr. Grobstein's well-articulated initiatives.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-3943011676623214652011-05-13T23:35:02.542-07:002011-05-13T23:35:02.542-07:00Thank you, Patient Advocate. Dr. Grobstein's ...Thank you, Patient Advocate. Dr. Grobstein's testimonies are always riveting. There is a video on youtube of Dr. Grobstein's testimony here: http://www.youtube.com/watch?v=Md1qBjU2bnE<br /><br />And thank you, Dr. Grobstein. Once again, you are focusing on the areas which really need to be addressed. <br /><br />Patricia Carterwildaisyflhttps://www.blogger.com/profile/03631249631409695914noreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-33031087870678439042011-05-13T19:59:24.439-07:002011-05-13T19:59:24.439-07:00Maybe the "Centers for Disease Control" ...Maybe the "Centers for Disease Control" should "Control" some diseases like CFS. Isn't that their whole point of existence?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4895604594896814289.post-74811647248681760512011-05-13T14:35:16.580-07:002011-05-13T14:35:16.580-07:00The CDC doesn't care about us, and, because of...The CDC doesn't care about us, and, because of that, nobody else does, either.Three Chord Montynoreply@blogger.com