Sunday, June 14, 2009
Dr. Kenny de Meirleir
Dr. Kenny de Meirleir is a Belgium CFS/ME doctor who practices vertical medicine. There is no one quite like him in the field. He has developed his own theory about gut dysbiosis being the essential issue with CFS/ME. Other CFS doctors as diverse as Dr. Paul Cheney, Dr. Ritchie Shoemaker and Dr. Dan Peterson have now adopted his ideas. Not too many people have noticed this. Through a special group, funded by an anonymous donor, these doctors and clinicians have regular meetings and exchange of ideas. Dr. De Meirleir is in close touch with Cheney.
Dr. De Meirleir states that the gut wall is abnormal in CFS. As a consequence good bacteria cannot stick to the intestinal wall. This abnormality determines what is in the gut. He suggests aggressive strategies to deal with the problem. It has to be tackled at a fundamental level. He believes that high viral titers have nothing to do with the disease. The gut goes down first. All these antivirals are useless until you take down the cause - and the cause is a neurotoxin that also shuts down the mitochondria.
Dr. De Meirleir believes that the Belgium Red Labs Fecal Microbial test is very precise in measuring pathogens - and it tells us how much bacteria, and which and where. The Red labs test is a fecal microbial test of all the major bacteria that are in the gut. And according to him, this teaches us a lot. Basically all patients shift toward anaerobic metabolism. Once the problem bacteria are identified he kills the pathogens without doing too much damage, and then he begins rebuilding the gut. This might have to be to done 2 or 3 or 4 times because the bad stuff can come back. Because the bowel is a very conservative organism, it doesn’t change very well, so it takes a while.
The bacterial pathogens that cause the most problem are streptococcus, enterococcus and prevotella.
Ampligen is only a treatment for one of the consequences of this disease; it is not treating the basic problem. He now has the evidence for this, and will publish it.
His idea is simple: you shut down the cause and then you start cleaning up. All these gut immune cells, 80% of the immune system, live for a year - so to change the gut it takes a year. In the meantime you keep shutting down H2S so that is does not go in a bad direction.
The idea is to map the problems and then make a decision as to the biggest impact. Detecting this will get better and better. Stanford has this test now where they can see all the active organisms. These in effect are all consequences; they are not causing the disease. The disease is caused by a neurotoxin because the intestinal bacteria have shifted and because they are exposed to heavy metals. In response you do two things: break down the bacteria so they don’t produce heavy metal in this vicious cycle and then you start chelating.
Dr. De Meirleir says that he is seeing 23 severely ill patients in Norway and that eight of them have gotten out of bed since March 2009. He did not want to present this information to a UK audience, preferring to present it to the people concerned in Norway. The conference in Norway is on June 12th.
Dr. De Meirleir will write a book about his treatment. There is 15% who have a brain virus and they will fall out of this gut dybiosis thing. With them the main problem is a neurological problem, although the blood brain barrier difficulties might be connected to the gut. The other 85% have a digestive problem. LPS is a very immunogenic subject. You learn that gut is full of holes. You have to go one step further. According to Dr. De Meirleir, this was the missing link.
Dr. De Meirleir states that the gut wall is abnormal in CFS. As a consequence good bacteria cannot stick to the intestinal wall. This abnormality determines what is in the gut. He suggests aggressive strategies to deal with the problem. It has to be tackled at a fundamental level. He believes that high viral titers have nothing to do with the disease. The gut goes down first. All these antivirals are useless until you take down the cause - and the cause is a neurotoxin that also shuts down the mitochondria.
Dr. De Meirleir believes that the Belgium Red Labs Fecal Microbial test is very precise in measuring pathogens - and it tells us how much bacteria, and which and where. The Red labs test is a fecal microbial test of all the major bacteria that are in the gut. And according to him, this teaches us a lot. Basically all patients shift toward anaerobic metabolism. Once the problem bacteria are identified he kills the pathogens without doing too much damage, and then he begins rebuilding the gut. This might have to be to done 2 or 3 or 4 times because the bad stuff can come back. Because the bowel is a very conservative organism, it doesn’t change very well, so it takes a while.
The bacterial pathogens that cause the most problem are streptococcus, enterococcus and prevotella.
Ampligen is only a treatment for one of the consequences of this disease; it is not treating the basic problem. He now has the evidence for this, and will publish it.
His idea is simple: you shut down the cause and then you start cleaning up. All these gut immune cells, 80% of the immune system, live for a year - so to change the gut it takes a year. In the meantime you keep shutting down H2S so that is does not go in a bad direction.
The idea is to map the problems and then make a decision as to the biggest impact. Detecting this will get better and better. Stanford has this test now where they can see all the active organisms. These in effect are all consequences; they are not causing the disease. The disease is caused by a neurotoxin because the intestinal bacteria have shifted and because they are exposed to heavy metals. In response you do two things: break down the bacteria so they don’t produce heavy metal in this vicious cycle and then you start chelating.
Dr. De Meirleir says that he is seeing 23 severely ill patients in Norway and that eight of them have gotten out of bed since March 2009. He did not want to present this information to a UK audience, preferring to present it to the people concerned in Norway. The conference in Norway is on June 12th.
Dr. De Meirleir will write a book about his treatment. There is 15% who have a brain virus and they will fall out of this gut dybiosis thing. With them the main problem is a neurological problem, although the blood brain barrier difficulties might be connected to the gut. The other 85% have a digestive problem. LPS is a very immunogenic subject. You learn that gut is full of holes. You have to go one step further. According to Dr. De Meirleir, this was the missing link.
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One of the most comprehensive and current articles I have read, and I have cruised the net; and physicians a lot. I had contact with Dr. Shoemaker in May, 09; and he didn't even mention this. I am greatful for this information. I hope you add to it timely in the future.
ReplyDeleteSteam in this area of Practice seems to be building. Maybe we can be cured after all. It would be nice if treatment was affordable to the average person.
do Brazil, suffer from sleep evil repairman, upset, and probably of CFS. I created an article talking about the relationship between gut bacteria x x H2S. I remember the fact that when we suffer dysentery have a noticeable improvement in the provision of day. I always knew that the unwillingness was related to that. When I was in hospital in 2006, zero in the diet, I realized I was giving less ammunition to the enemy, the food. I sent my article to 22 PHD's UNIFESP, but nobody answered me. I had recorded in the article archives.
ReplyDeletethis sounds great in theory, but are the results showing in practice?
ReplyDeleteDe Meirleir does not cure patients. He only researches. I am one of his patients and he has only given me treatments that are improving people, like correcting nutrition deficiencies, that would not affect his research data.
ReplyDeleteSorry, I meant tto say that he has not corrected my nutritional deficiencies because they would affect his research
ReplyDeleteAre there any witnesses to his sucessful treatments? Would be interesting to hear from anybody else than himself.
ReplyDeleteIt's very interesting to hear him mention 15% have a 'brain virus'. I've googled but can't see him mentioning what it might be anywhere. Do you think he means XMRV since he's encouraging patients to take an XMRV test? If so why such a low number when the Canadian definition patients test about 80% XMRV+. I've been trying to do the math to work out what percentages but don't know which criteria de Meirleir uses for diagnosis.
ReplyDeleteDoes anyone know anything about how he's using GcMAF?? I already know of two PWCs planning to see him for the purpose of trying GcMAF.
ReplyDeleteWith the help of Dr. De Meirleir and his team I've gone beyond them. Although he and his group unveiled ONE fundamental pathophysiological mechanism in ME/CFS, he did not reach the ULTIMATE CAUSE of the the disease. And it seems I did.
ReplyDeleteSo far I've tested as REAGENT 127 patients with his NEUROTOXIC METABOLITE® test, and 82% became NEGATIVE after the therapy I've developed. Also most got real clinical improvement, or full remission. I'll soon publish my data.
the b12 vitamin injections made my wife take off her glasses to see. but after the 4-5 injections was finished. she is tired again (adhd+me/cfs) i see that ) blood anemia lacks b12 vitamin. can the multi allergie go over to anemia after time. poor blood pressure to legs and brain. she doesnt get any answers from de meijleir email. i cant donate when the help is just half way. fireheart82@hotmail.com
ReplyDelete