Here is a video of Maija Haavisto speaking about her experience with Low Dose Naltrexone (LDN).
The Patient Advocate has wanted to write something about this amazing young woman for some time. Now, with this excellent and informative video, is a good time to do this. Maija Haavisto, a ME/CFS patient herself, has written an excellent book on drug and supplement treatments for ME/CFS. The book is called "Reviving the Broken Marionette" and it can be purchased on her blog site or on Amazon. This book is a must read for anyone dealing with this illness. The Patient Advocate, in his efforts to help his daughter, has consulted this book many, many times. If the PA were to recommend buying one book on ME/CFS, this would be it.
Maija is a self-starter who has done a tremendous amount of research on various drugs that can potentially be helpful in ME/CFS. This self-directed research evolves from her desire to cure herself of this illness. Maiji clearly believes that there are existing drugs and therapies that can bring relief or partial relief to this strange illness. While she is correct in this assessment, she is also open to suggestion. She is a particularly strong advocate of LDN as a ME/CFS therapy. Take a look at this video and admire the efforts of this young woman.
It's the first I've heard an ME/CFS patient strongly and publicly promote this drug. You'll read people experimenting with it here and there, but up to now, we in the U.S. haven't heard many great success stories. Maija's dozen isn't exactly a study, but it sounds like Finland will be giving such a go. She's obviously cognizant that she's writing on a deadly disease and that what's done a lot for her won't work for everyone, and there's so much more work to do. Thank you for posting!
ReplyDeleteI have taken LDN for almost four years. I have CFS, am 63. The LDN lifted a whole body weakness within a month. Many start, and then stop too soon. I will take LDN for life, because of all of it's benefits.
ReplyDeleteSara W.
North Carolina
If you were appointed Patient Advocate for a close relative (parent, sibling, spouse, child, etc.) would you be able to carry out their wishes, including a wish to end their life if...? Would age or disability make a difference in your ability to serve as their patient advocate?
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I have been looking into becoming a volunteer child advocate, however I am in an emotional turmoil trying to decide if is the right to do, since I've come from the same background. I am afraid to get too emotionally involved, but I know everyone's help is needed
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